Join team PUCK today!

End EB Now

Text "BELLA" or "TRIPP" to 50555 to donate $10 to EB Research.

Click here for details.

Join our community

Sign up to receive email communications from PUCK

Name

Email


Share |

Now a disease can be rare without being an orphan.

Pioneering Unique Cures for Kids (PUCK) recognizes that curing a rare disease lacks the mass appeal that brings with it public awareness and funding. As a parent-driven initiative of Children's Cancer Research Fund, rare genetic diseases now have a voice in the private sector to help support the limited government funding available to these "orphan diseases."

By teaming up with the research team at the University of Minnesota, PUCK provides research funding to the doctors and on-the-ground local support to the patients who are together transforming incurable diseases into curable ones, one child, and one disease at a time.