Osteosarcoma Survivor
Read Mariah's Story

Brain Tumor Survivor
Read Josh's Story

Leukemia Survivor
Read Sydney's Story

Leukemia Survivor
Read Alijah's Story

Wilms Tumor Survivor
Read Rosie's Story

Leukemia Survivor
Read Ryan's Story

Retinoblastoma Survivor
Read Sydney's Story

Documenting Your Child’s Cancer Treatment

Keeping records can save lives.

Compiling a complete medical history for childhood cancer survivors is a daunting task. But having a thorough and complete medical history on hand is essential—it can be a lifesaver.

You should obtain a written history of all cancer treatments from the original treating institution.
The information you need to receive includes:

  • Description of the specific type of cancer, extent and location of the cancer
  • All surgical procedures performed (even for central line catheters)
  • Specific chemotherapy drugs and amount of each drug received
  • Sites that received radiation therapy and how much radiation each site received
  • Any known complications experienced due to the cancer or treatment.
  • Latest test results performed to monitor for adverse health effects, emphasizing potential problems that may require more frequent monitoring.
  • Specific concerns for future medical follow-up and recommended monitoring schedule of tests and procedures.

Doctors must have an up-to-date history in order to provide the best medical care. In case of a change of doctors, be sure to get the summary updated, especially with the most recent test results. This personalized summary can provide valuable information to the doctor and help maintain a regular schedule for follow-up visits.

Back to Treatments and Therapies