Mariah
Osteosarcoma Survivor
Read Mariah's Story

Josh
Brain Tumor Survivor
Read Josh's Story

Sydney
Leukemia Survivor
Read Sydney's Story

Alijah
Leukemia Survivor
Read Alijah's Story

Rosie
Wilms Tumor Survivor
Read Rosie's Story

Ryan
Leukemia Survivor
Read Ryan's Story

Sydney
Retinoblastoma Survivor
Read Sydney's Story

Latest

Our latest news, events, and updates

This is where you’ll find current news articles, kids stories and research news about pediatric cancer and other rare diseases. We’ll also keep you informed on what’s happening at Children’s Cancer Research Fund.

Most Popular Articles

September is Childhood Cancer Awareness Month

| September is Childhood Cancer Awareness Month, a time to honor and remember children and families affected by these rare…Read More

Infant leukemia: A team approach

| Among all childhood cancers, leukemia in infancy is rare and challenging for researchers and doctors tasked with understanding causes and…Read More

What To Say When There’s Nothing To Say

| This piece was originally posted on Jane’s blog, soothingthespirit.com. When you have a child with cancer, social media…Read More


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Upcoming Events

Love Beer. Hate Cancer. Tournament

Saturday, May 7
Annual softball and kickball tournament held in memory of Katie Jurek. She lost her battle to osteosarcoma at the age of 20 in 2007. Rain or shine come celebrate life as Katie would have on May 7th. Event Site

Time to Fly 2016

Saturday, June 25
Join in the race against childhood cancer at Time to Fly! Every step brings us closer to a cure for childhood cancer. Event Site

Friends of CCRF Golf tournament

Saturday, June 25
Lube Tech employees returning for the 4th year to Grand National Golf Club in Hinckley Event Site

A New Era for Children with Neurofibromatosis

| “We are entering a new era of cancer therapy through targeted therapy and immunotherapy that will leave the radiation and chemotherapy we know today in the dust,” says Christopher Moertel, M.D., and a professor in the Division of Pediatric Hematology and Oncology, Department of Pediatrics, University of Minnesota. His immediate interest is a new class of drugs that target…Read More

Watching, Waiting and Skating

| Colton skates in his socks across the wood floor to the fish tank and shows off “Goldy” and “Yo-Yo,” his prized goldfish. Like any 7-year-old boy, Colton loves Legos and playing hockey. But what many don’t know is that he has a four-inch tumor embedded in his leg due to a genetic disorder called neurofibromatosis type 1 (NF1). NF1,…Read More

I Had to Stay Strong

| Written by Taylor Lieber Taylor, 19, was diagnosed with Ewing sarcoma in October 2012.  A little over two and a half years later, she was diagnosed with secondary high-risk AML. This week, Taylor writes about her good friend Jaimie and their transplant experiences. Part 4- I Had to Stay Strong Taylor pictured left, Jaimie pictured right …Read More

She Wasn’t Breathing; Her Heart Stopped

| Written by Taylor Lieber Taylor, 19, was diagnosed with Ewing sarcoma in October 2012.  A little over two and a half years later, she was diagnosed with secondary high-risk AML. This week, Taylor writes about her good friend Jaimie and their transplant experiences. Part 3- She Wasn’t Breathing; Her Heart Stopped Jaimie pictured left, Taylor pictured right. When…Read More

An Unfamiliar, Familiar Place

| Written by Taylor Lieber Taylor, 19, was diagnosed with Ewing sarcoma in October 2012.  A little over two and a half years later, she was diagnosed with secondary high-risk AML. This week, Taylor writes about her good friend Jaimie and their transplant experiences. Part 2- An Unfamiliar, Familiar Place Jaimie pictured left, Taylor pictured right.…Read More

An Unfortunate Coincidence

| Written by Taylor Lieber Taylor, 19, was diagnosed with Ewing sarcoma in October 2012.  A little over two and a half years later, she was diagnosed with secondary high-risk AML. This week, Taylor writes about her good friend Jaimie and their transplant experiences.  Part 1- An Unfortunate Coincidence Four years ago at Camp Mak-A-Dream, I…Read More

Silver Strings and the Fear of Relapse

| Written by Deanna Senior, mother of Sydney. Sydney was diagnosed with Burkitt’s Lymphoma, a form of non-Hodgkin’s lymphoma in Spring 2015. Diagnosis I was by myself with Sydney when she was recovering from surgery and the oncologist told me that he felt 99 percent sure that she had cancer. After the biopsy, her doctors peeked their heads…Read More

What Bravery Means to Me

| Written by David Dykes, father of 9-year-old Connor, a brain tumor survivor. To even begin this, I have to explain my history: I’m a Marine infantry veteran and have served with my local sheriff’s office for the last 13 years. I don’t classify myself as brave, but I have witnessed bravery, courage— things that have just left my mouth hanging…Read More

Happy

| Written by Abby Breyfogle, mother of Teagan and twins Kendal and Kenedi. Kendal and Kenedi were diagnosed with acute myeloid leukemia. This post was originally published on Abby’s blog, Twice the Fight. Since we’ve come home from the hospital with the girls from their cancer treatment, I get asked a lot of questions which…Read More

This New Life

| Written by Trisha Reed, mother of Ewing sarcoma survivor, Isaac This new life feels a lot like leaning into the wind.  Not so long ago my days were filled with doctor visits and hospital stays, blood draws and port accesses, medicines and trying to find something my child would eat, frantically looking out for germs because for Pete’s sake…Read More

I Will Always be the “Baby”

| Written by Taylor Lieber Photo: Kathy King Photography for the Gold Hope Project Now 19 years old, Taylor was diagnosed with Ewing sarcoma in October 2012 at age 15.  A little over two and a half years later, she was diagnosed with secondary high-risk AML. She had a bone marrow transplant this past August. …Read More

As My Daughter Goes Through Surgery

| Going into surgery. In October 2015, our daughter Rylie was diagnosed with osteosarcoma.  As part of her treatment protocol, Rylie needed to have surgery to take out the tumor in her leg. I always felt like surgery would be a huge turning point for us and for Rylie.  We have looked forward to it since the beginning. …Read More

Defeating “This Beast”: How one mother plans to beat osteosarcoma

| At midnight on the second anniversary of Jennie Nichols’ osteosarcoma diagnosis, her mother, Kelly, sat at the computer and hit the Zach Sobiech Osteosarcoma Fund donate button as her eyes filled with tears. Jennie’s osteosarcoma journey began in 2013 when she was just 12 years old. Strong-willed, she was involved in all of the decisions regarding her treatment from day…Read More

My Son Taught Me to Overcome

| I never thought we would find ourselves in the middle of a cancer battle, certainly not a battle with our child. Yet, in February of 2015, my son, Griffin, was diagnosed with a rare form of cancer called Ewing sarcoma. Going through this journey of cancer and watching what Griffin has endured has inspired me.  My son overcame so…Read More

Things that Beating the “C” Word Taught me About Life

| When I was 16 years old, I began to have a dull, aching pain in my left knee. It shot up at down and eventually bothered me so much that I began to complain to my friends and family. Quickly my leg became so weak that it often caused me to inexplicably fall. I remember sitting in class one day…Read More

Older Articles

| Overcoming the Port Access

| Research in Sarcomas Gets Help from Man’s Best Friend

| Turning 1,600 iPhones of Data into Targeted Treatments

| Conquering Fear: Griffin’s Story

| Stronger Together: 35th Annual Dawn of a Dream

| Butterfly Awards

| Community Highlights

| Ryan, Shannon, & Fish’s KS95 for Kids Radiothon

| Meet Mikaela

| Picnic of Hope

| Words I Never Want to Say

| The November of Grief

| Zach Sobiech Osteosarcoma Fund Surpasses $1 Million

| Holding Hands with a Butterfly

| New Strategies for Fighting Leukemia

| Childhood Cancer Awareness Month

| Cancer Requires us to Create a “New Normal”

| We’re Moving

| Macy’s Fashion Pass

| Being a dad means you pedal on

| The fear of relapse is a real thing

| Time to Fly 2015

| What To Say When There’s Nothing To Say

| Researchers discover genes that cause deadly osteosarcoma

| Cartwheeling through Relapse: Meet Peighton

| An Important Message to our Donors

| Care Partner volunteer spotlight: Meet Dustin

| International Bereaved Mother’s Day?

| Holding my breath: 2 years, 1 month and 26 days

| Thank you to Macy’s

| Care Partners Volunteer Spotlight: Meet Caitlin

| How I act around children with cancer

| How my son led the way

| Children’s Cancer Research Fund launches Great Cycle Challenge to fight kids’ cancer!

| Spirits: How cancer created a bond between two kids named “Zach”

| Looking through new eyes: A father’s perspective on his son’s cancer

| Why I don’t daydream about my children’s futures

| Living with Late Effects- Part Three

| Living with Late Effects- Part Two

| Research Snapshot: Donations are making osteosarcoma research fly higher

| Living with Late Effects- Part One

| How my son’s cancer made me the student

| Courage, Joy and Shampoo Mohawks

| How childhood cancer saved my marriage

| Being the Bear