Join team PUCK today!

Join our community

Sign up to receive email communications from PUCK



Share |

What's more brutal than hockey? The worst disease you've never heard of: Epidermolysis Bullosa.

Pioneering Unique Cures for Kids (PUCK) recognizes that curing a rare disease like Epidermolysis bullosa (EB), lacks the mass appeal that brings with it public awareness and funding. As a parent-driven initiative of Children's Cancer Research Fund, this rare genetic disorder now has a growing voice in the private sector to help augment the limited government and industry investment to help fight this "orphan disease."

By teaming up with the research team at the University of Minnesota, pioneers in stem cell transplantation, PUCK provides research funding to the doctors and on-the-ground local support to the patients who are together transforming an incurable disease into a curable one, a child at a time.