Success Stories
Fallyn's Story
Fallyn, is one of the "butterfly children" because her skin (both inside and out) is as fragile as the wings of a butterfly. Her and her fellow butterflies, now have hope at a cure for their disease that was previously incurable.
Fallyn was a candidate for the clinical trial treatment at the University of Minnesota. She received her treatment in June of 2009 and is home and doing very well. We hope by sharing her story that more children will be able to receive this life-altering treatment.